Currans raise $140,000 for DMD research
At the third annual Kindness Over Muscular Dystrophy benefit on June 9, local residents Jessica and Christopher Curran brought awareness and raised $140,000 to advance research toward a cure for Duchenne Muscular Dystrophy. The Currans’ seven-year-old son, Conner, was diagnosed with DMD at the age of five.
“Conner is an engaging, thoughtful young boy who is always ready with a warm, bright smile that lights up his face,” said Christopher. “This smile amazingly remains on his face through numerous blood draws, MRIs and muscle biopsies. Because of Duchenne, Conner has had to endure the emotion struggles of coping with a disease that has limited his abilities to run and play but he has battled through his journey with a courage and inner strength that is an inspiration to his parents and family.”
Duchenne Muscular Dystrophy is a progressive muscle wasting disease that primarily affects boys. Currently, most do not survive past early adulthood.
Scientists are on the cusp of actually finding a cure, according to Christopher.
“Exciting new research and gene therapy clinical trials are currently being conducted that may change the course of this disease forever,” he said.
The Currans announced at their event that Conner was the first patient dosed in a Pfizer DMD gene therapy clinical trial and he has shown improvement in his ability to walk up stairs.
To date, Kindness Over Muscular Dystrophy has raised approximately $560,000 and all proceeds have gone to fund research and clinical trials. The Currans have partnered with Parent Project Muscular Dystrophy (PPMD), a 501(c)(3) that’s the largest and most comprehensive charity organization focusing on ending Duchenne. The mission, culture and advocacy of Parent Project Muscular Dystrophy resonated with the Currans from their very first contact with them at the PPMD Annual Conference in 2015. PPMD is dedicated to funding research, advocacy and establishing optimal care practices for all DMD patients. All donations flow directly to PPMD and are tax deductible.